Monday, April 21, 2008

Three week update

Dear friends and family,

Tomorrow marks three weeks since Jane suffered her stroke. Here's where we are at:
  • Jane is in a skilled nursing facility (what James and I refer to as "snf"). We like the place very much. It's close to us and on the way to Jane's house so we can take care of that as well. It has been warm and welcoming.
  • She has a great occupational therapist and speech therapist. The doctor that stops in weekly has been great too. Her care team gets together on a weekly basis to assess where she is at with the goals they have set for her. We are now beginning to form partnerships with these people with a meeting with the speech therapist on Tuesday to have her teach us how we can help her.
  • The immediate goals are range of motion, swallowing and object identification. She has progressed well in those areas. Jane has to have an xray done to make sure she is swallowing her puree the right way and then we'll be in a process of gradually weaning her from the feeding tube and introducing soft foods. Big accomplishment! In a test to distinguish objects, she scored a 7 out of 8. Jane still isn't able to talk. She nods yes but doesn't yet nod no. Sometimes we know she is alert, aware and understanding and sometimes we aren't quite sure. She gives smile and then sometimes seems to be really sad. Yet all in all it is all good and both therapists are very happy with her progress.
  • We have no idea what all lies ahead and we have to take it day by day. We are anxious about many things but trying to take one day at a time, relaying on friends and family for support and basically, surviving. It hasn't been easy for any of us. We all (Jane, James and me!) have our bad days and our good days. As a couple too, we have our bad days and our good days. We are gradually moving from survival and crisis mode to somewhere between there and a "new normal". James has returned back to work and I'm plugging away at school, practicum, graduation and job hunting
That's it for now! Thank you for all your words of encouragements, meals, gift cards, etc. The outpouring of love and support has truly been a blessing and humbling. We couldn't have survived the last three weeks without you and glad to have you as we look to the days and weeks ahead.

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